Story
(Natalie writing this) Hi family and friends, THANK YOU so much for selecting time(s) to assist on the calendar below- (scroll down on the calendar itself to see all times) BUT please read this info & the rules/ requests below to understand the situation first. WHERE: LDS Hospital Floor 8 Room E852 (East). (Park in the garage that says "Public Parking" I believe it's on C street & is free.) On floor 8, Push the silver button to go through the double doors. There is a great nursing staff- but they can't be in there all the time so the calendar is for additional support and help for Mom whenever someone can. More than 1 person can go at a time if you like. To paint a picture for you: We don't know what to expect. Mom was much more alert and able to visit only yesterday 8-6 but today 8-7 was a bad day of intense pain for Mom & she needed rest/ quiet, and wouldn't have had energy to visit. She can barely move her torso; moving takes a very long time. And things might get worse before they get better. -Mom needs a lot of rest to heal, so please go with the intention of tending to her needs and not of "visiting". Let her initiate it if she feels up to it- and if she does visit, please don't burden her with any negative news right now- please focus on bringing support, love, hope, and cheer to her and just be there in the room with her even if she's sleeping, for if she wakes with needs.(FYI they do not allow fresh flowers on this floor) -Sometimes she does not think clearly (she is on a lot of medications) so she needs people to help advocate for her and help her make her decisions. -Right now she benefits from a ton of tiny things done for her (adjusting pillows/ blankets, reaching things for her, making sure the nurse call button is near her, handing her meds/ water, reminding/ helping her to order breakfast, possibly lunch OR a protein boost drink, and dinner if she hasn't (order by calling the # on menu), cutting the food and placing it in a napkin in a way she can hold to eat OR even feeding her if she must hold herself upright in the chair (They said she should eat upright but she must balance using both her hands to avoid pain), calling nurses if her IV's have alarms go off, putting her oxygen back on her nose if it comes out, making sure her water stays filled, keeping things quiet and peaceful for her whenever possible, etc. -Know that you might get there and not even be needed much- 1: We don't know when her appointments are so they may have wheeled her out of the room. 2: She gets embarrassed if people besides nurses are in the room when she has to go to the bathroom or shower, when they change her "dry wick" (catheter), when they come in to do tests where her gown must be moved, etc. so you might be sitting outside the room during these times and they can be up to 30 mins if she is in a lot of pain. (you can turn the knob on the top of the door window to do a quick peek through the blinds to see if she is done and back in bed) 3: If she wants privacy or to be alone or to "wind down". -Please only share this calendar with people who she would trust to see her in such a vulnerable state and can help serve and support her. I know it's sad, and a LOT- so thank you for those willing. Please read the rules below.
Special Notes
IMPORTANT RULES/ REQUESTS: -NO coming if you are sick/ exposed to sick ppl. Her immune system is compromised. -If Doctors come give any updates, please text key points to Natalie at 801-842-6122 or Julie 801-505-3840. -No kids at this time (help keep things quiet so she can rest) -If you end up not being able to take your slot, please come back here and open it back up -Don't try to move her or help her sit up- let the nurses do it. Don't adjust her bed- let her do it. The bed needs to stay in a good position for her as she can't handle the bed being laid flat. -Don't plan to use the bathroom in her room, they keep containers in there to monitor what she eliminates. Other bathrooms are by the front desk. -There is a little kitchenette down the hall before you come to the double doors that has some paper dishes, utensils, straws and some beverages/ snacks in the fridge for guests if you need to eat something. -If you have $ to contribute to Mom's medical bills/ future care needs, then 1st: THANK YOU and 2nd: please give it to Julie, Natalie or Katie. Mom is not thinking 100% clearly and keeps trying to share $ given to her with her family members but it is truly needed to save ONLY for HER medical care. We also don't want cash left in her room unattended. -We aren't yet sure when they will end her hospital stay and it sounds likely they will move her to a skilled nursing facility, where she will probably still need additional caretaking besides the staff there, and later at home too- so more dates may be added in the future. Thank you from the bottom of our hearts.