Saul’s ALS Journey

Our dear friend, Saul, was diagnosed in October with bulbar-onset amyotrophic lateral sclerosis (ALS). We are heartbroken, and we hope to do everything we can to help support Saul and his daughters in this journey. There is currently no medical cure for ALS, so treatments focus on slowing the progression of the disorder and maximizing Saul's quality of life. Bulbar-onset ALS starts with the throat, followed by progressive paralysis. Speaking and swallowing are his main struggles right now. Saul is undergoing treatment at an ALS specialty clinic in Portland. He is still working at school as a K–8 Social Emotional Advocate, though weakness in his voice and medical visits are forcing him to work less. Life expectancy for bulbar-onset ALS varies — Saul's medical care team is hopeful that he will have another year of quality life, if medications and treatment are able to slow the progression. We are hoping for more time than that with Saul. Follow this Give InKind page for updates and opportunities to provide meals and other local help that is needed. Check the calendar to sign up for meal support (see Special Notes below) or other requested help. We are also reaching out for financial support for Saul because of decreased income on top of medical bills for diagnosis and treatment. Some of his treatments are not covered by insurance, and he will soon be transitioning to long-term disability, which will likely not be enough to cover living expenses for him and his two daughters. We have created a GoFundMe page at https://gofund.me/7bc1afa5f. You can also Venmo Saul directly through the widget on this page. Thank you for helping us keep Saul around as long as possible. Anything and everything helps! We are most grateful! With love and gratitude, Saul’s family and friends