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Love for Lacey’s Climb

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Love for Lacey and her family while she’s admitted to Penn State Children’s Hospital and as she fights against Pompe Disease. Lacey is currently admitted to Penn State Children’s Hospital and will be traveling in two weeks down to Philadelphia or Pittsburgh for further evaluation. On October 16th 2025, Lacey was diagnosed with a very rare metabolic disorder called Pompe Disease. Pompe disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body’s cells. This build-up causes progressive muscle weakness, respiratory failure, heart issues and is often fatal. Due to the progressive, multisystemic involvement of Pompe disease, Lacey will require complex, coordinated, and comprehensive multidisciplinary medical care for the rest of her life. In order to manage her disease, Lacey will require life-long infusions of enzyme replacement therapy as well as frequent clinical examinations that may include, but are not limited to the following Biochemical Genetics, Cardiology, and Pulmonology. Due to the level of severity of this medical diagnosis and the need for life-long therapy this consists of regular visits and overnight stays to CHOP -Children’s Hospital of Philadelphia and UPMC Pittsburgh Children’s Hospital. For her family, this means Copays, Traveling cost associated with the drive to Childrens Hospital of Philadelphia and Pittsburgh , and other unexpected medical expenses that come with Lacey’s Climb with Pompe Disease. Lacey is currently admitted to Penn State Children’s Hospital and will be traveling in two weeks down to Philadelphia or Pittsburgh for further evaluation. Help us with endeavor and support Lacey on her climb with Pompe so her family can focus on their sweet baby girl and get her the treatment she needs without having to worry about the financial burden of additional expenses. Thank you so much for your support We love you all.

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