Jameson's story told by his mom, Nicole. "I thought the worst thing I would experience would be the miscarriage of our third baby. I was wrong. I always get a wave of anxiety when it’s time for the anatomy scan. Even though it’s the most exciting time of the pregnancy when you find out what you’re having and you get to see your baby, it’s also when they check to make sure everything is on track. I told Stephen on the way I love and hate the anatomy scan because it’s where they are mainly looking for issues. Little did I know they would find one. Your baby’s heart is underdeveloped. It looks like the left ventricle of the heart did not develop. It’s a very serious congenital heart defect. My world came crashing down. We are referring you to high risk. Fetal echocardiogram. Very serious heart defect. Options. Termination. (What the F) I couldn’t even think straight. I can’t even remember what was going through my mind. All I remember was Stephen’s hand on mine. Everyone tells me I’m so strong but I don’t feel strong at all. Went we to see a pediatric cardiologist where they did a fetal echocardiogram and confirmed his diagnosed of hypoplastic left heart syndrome. Hypoplastic left heart syndrome (HLHS) is a group of defects of the heart and large blood vessels. A child is born with this condition (congenital heart defect). It occurs when part of the heart doesn't develop as it should during the first 8 weeks of pregnancy. In HLHS, most of the left side of the heart is small, underdeveloped, or both. The following structures are usually affected: Mitral valve. This valve controls blood flow between the left atrium and left ventricle. Left ventricle. This is the lower left chamber of the heart. It pumps blood to the body. Aortic valve. This valve controls blood flow from the left ventricle into the aorta, and then to the body. The aorta is the major blood vessel that delivers blood to the body. Aorta. This is the large artery leading from the left ventricle to the body. The left ventricle is normally very strong so it can pump blood to the body. When it is small and poorly developed, it can't pump any or enough blood out to the body. For this reason, a baby with HLHS will not live long without surgery to fix the defect. I soon realized this would be a completely different experience with this baby than with the girls. I really mourned the loss of a healthy child and a normal life. A lot of things will be will taken away from us in the best interest of him. Holding our baby, caring for him, pumping every two hours instead of breastfeeding, meeting his siblings right away. Newborn clothes. Coming home from the hospital together. We don’t know exactly what the future will hold but I know he was given to us and I’m trusting the plan for him. He’s truly our little miracle. Our warrior. ❤️💙" As friends of this family we have decided to make this page to show the family how much we support them through this tough journey. #jamesonsvictory
The best way to help the family is by donating gift cards or funds here directly via the paypal. It goes directly to Nicole and Stephen's account. Stephen and Nicole are back and forth between the hospital a lot and are never sure when they will be eating their next meal. Gift cards to restaurants or donations via paypal will help them be able to grab a meal quickly when they need it or grab a quick meal at the hospital. They did not expect to be out of work for up to 6 months and maybe more so any donation that can go towards food, toiletries, gas, and even bills while they are out of work will be a big help. You can also sign up for a meal to be delivered by adding an item to the care calendar, although they are not sure when they will return to be able to eat it the Ronald McDonald house can accept food for the family at their front counter. They will then put it in the fridge until Nicole and Stephen want it. To send a meal, a card, or anything on your heart I have added the delivery address on this page below. 1600 SW 14th St, Gainesville, FL 32608 We will continue to add information to this care page as we go along.