Kyle Indalecio Jr.’s Support Team

Kyle Jr. was born with a gene mutation and at 8 months old was diagnosed with neurofibromatosis also known as (NF1). This condition can range from Mild to severe and can change throughout Kyle’s life. Since then we travel back and forth to Stanford Palo Alto multiple times yearly so Kyle can see all his specialist such as Cardiology, neurology, dermatology, ophthalmology, geneticist and now a neuro-oncologist who specializes specifically in NF1. This is because of the signs and symptoms this condition can cause and affect his daily activities. We have a lot of unknowns every single day because of how much this can affect our boy. His most recent and current situation started on June 21st, 2024 when he was waking up at the middle of the night and in the morning crying in pain. Due to his consistent neck pains we contacted Stanford June 25th to push and schedule for an urgent MRI that was originally scheduled for August 10th. MRI was done that same week on June 27th and Kyle and I received his results the very next day. Unfortunately they found Kyle to have multiple tumors inside of his body, more than 6, all different sizes. This includes one under each armpit, two next to his esophagus and 4 major ones along his cervical spine. Since then we have gone to appointments to meet and speak with the surgeon and go over everything we need to know about Kyle’s upcoming (Laminectomy) surgery for the removal of neurofibromas along his spine. Surgery is set on July 31st and we will be spending the night at the hospital for about a week post surgery. The tumors will be sent out to pathology to test for cancer and also donated to NF1 clinic for studying. Afterwards we will be traveling to Stanford very frequently for post op appointments, continuous MRIs where Kyle will have to be placed under anesthesia, and his normal yearly specialist appointments will now be every 3 months. The plan after Kyle’s surgery is the daily Chemo medication he will have to start taking in hopes that it will slow the growth of his current tumors and prevent any other tumors to arise. There is absolutely no cure for his condition. So unfortunately this is something kyle will live with for his entire life. Something we as a family will have to get through. As you can imagine this has been such a hard thing for us to process… to balance… and to prepare for because we also have baby boy on the way who will be here quite soon. Between our OBGYN appointments and Kyles appointments it’s been really hard for us to figure out daily routines. Thank you to Auntie Venus for sharing this wonderful website because we never knew something like this existed and thank you to everyone in advance for your love and support during this journey. Kyle Jr. is such a perfect, playful, strong and resilient boy. We will make sure he will always get the best care possible. All we can ask from you all is for your love, patience and prayers. 🤎 we love you guys and we’re so thankful for our friends and family!