Hi everyone, this is Liz. Most of you know that I’ve had to deal with major sickness on a daily basis and unfortunately it’s come to a really bad situation quite quickly. I do not know if you all know that along with MS, I was diagnosed with RA in 2011, Cervical cancer in 2022, Lupus in 2023 (they thought I had it earlier but didn’t get the positive test until then), ischemia, degenerative disc disease, blood disorder that is the cause of the chronic blood clots, and several other things. I have had chronic spine issues and I had a back injury several years ago. They wanted to fuse, plate and put steel rods in areas L1 through S2. I had the surgery scheduled in 2023 and then I developed more serious clots and it’s been canceled ever since. I’m already fused in the upper levels in my cervical spine, you probably all remember that surgery. So the last several years since Rob left after doing (and still doing) some really horrible things to me and the girls, we have been doing what’s needed and struggling just to survive. I am sure most of you don’t even know what transpired and that’s only relevant to know it’s been nonstop problems for us. Every day still is a battle with the things he does. So fast forward to now. On Monday March 2nd, I got up in the morning and I couldn’t stand but for only a few seconds. The pain was unbearable and it felt like I had dislocated my hip and back. I could take about five steps and made it to the bathroom and turned around to get back in bed. I figured it was just another flare because I’ve had a lot of episodes like this before, just not quite as severe. I just said OK we’re going to take it easy and not do anything and hope it subsides . Two days later, I still could not walk so I contacted my Dr and asked for some steroids thinking that would do it. It didn’t. About four or five months ago I lost control of my bladder and saw urologist from Upstate and they deemed it was because of the back damage. There’s nothing they could do to control it. I knew I needed to watch for certain changes and when they happened I needed to rush to the hospital. I also was dealing with more blood clots in my legs, which seemed to be the norm for me. So on Day seven of being completely stuck upstairs in my bedroom, I went to the bathroom and at that point had some severe spinal compression and needed to rush to the ER. My friend Lori got me to Upstate Hospital because that Where most of my doctors are. I spent the day and a half there and they did MANY tests with the results I knew would come back. Emergency surgery was needed but I did have many blood clots in my legs and the surgeon said he couldn’t operate. They also insisted on some specific testing because they are concerned with gastric or ovarian cancer. I have an allergy to the contrast so a special prep and testing is scheduled for this coming week. They wanted me to go into a rehab center but I couldn’t leave Isabella home alone to do that so I opted to come home. The plan was to try to get some in-house nurses and aide and Physical therapy. I was told to follow up with the surgeon within one week. However When I was in the hospital, I caught RSV, so for the last few weeks I’ve been pretty sick with that and unable to get up and even move around because I can’t walk very far at all. So Gabby took care of me during her spring break, then Nicole took some time off from work to get me to where I needed to be, and Brittany flew in last Monday night because I had some appointments this week that she needed to be with me. She is leaving Sunday night to go back to North Carolina, so it’s going to just be Isabella and I and that is why I am reaching out. This is too much on Isabella. I am hoping some of you will bring a meal to help alleviate one thing from her plate. I am trying to find help to be able to get a handicap ramp, bathroom installed downstairs and some mobility issues resolved. Nicole went with me to see the surgeon again and they stated that there is nothing they can do to help me. Nicole asked what to do when I start to go paralyzed and they said there is nothing further they can do but to get me to the hospital. The bladder and bowel damage is likely permanent at this point and I need to make my house handicap accessible . I am not looking for pity from anyone. I don’t want to be lectured that I need to change things because I know what I have to do and I already feel horrible about all of this that I don’t need to feel worse. I just would like you all to know what I have going on. I know everyone has so many of their own problems right now and that’s why I keep to myself, but I am seeing gabby and belle become very sad and overwhelmed. I have a Physical Therapist come in for one hour two days a week, an Occupational Therapist come one hour two days a week and they did an interview to try to qualify me for a personal care aide to help out around the house but they said it will take months to get approved. I am sorry that I don’t reach out more, I truly hope you all realize I am dealing with more than one person can possibly think of. I do love each and every one of you.
Follow pageFollow page
Supporting Liz and her family
W