I started this page because me and my daughter both have a rare disease we have hypophosphatasia which is a brittle bone disease my daughter has it as well I also have a kidney disease and grave disease so I’m in and out of the hospital all the time my husband passed away in in 2014 on February 27 the day before my birthday and December 2013 on the 14th my twin brother passed away from are bone disease i’ve had over 26 surgeries and I’m getting more worse as time goes on I’m currently waiting to get on Social Security and at the same time me and my daughter are in a situation where we’re trying to leave because I’m in a it used to be Physical but now it’s mental abuse and I just want me and my daughter to be able to get an apartment or something where we can live a normal life granted yes I’m sickly but my daughter makes my day every day she makes me smile if anyone can help us I would greatly appreciate it I wouldn’t be asking if I felt like I didn’t need it I’m at my last resort and I really truly want to be in a safer place and focus on my health I slowly deteriorating and I wanna spend what time I have left with my daughter as happy as I can my daughter only has the hypophosphatasia she has bone pains she is able to live a normal life she is the height of 4”6 she’s got her temps but I need to get her a car and I don’t have the money I’m on Social Security she does me and her have to take six shots a week I want her to be able to live a normal life as much as she can because as time goes on her disease will progress
You can look up children’s Hospital Chloe Storts and Heather Storts and we have a video that Children’s Hospital And you will find a video that describes our hypophosphatasia I had to go fund me but I never was able to receive anything they wanted me to send out request like my friends and family but my family doesn’t have the funds to help us so I deactivated it thinking about reactivating it if I can get someone to help me to be able to get you know I do have an actual car for my daughter but I have to get it fixed I have to take it to a shop I got it for before I I had to leave my job because I broke my hip and my femur and my knee and I’m unable to walk that well now but I do have a car for her but it needs fixed