Story
This is for a ten year old boy hoping to get a bone marrow transplant.He is batting a relapsed cancer called Philadelphia Chromosome Positive Accute lymphoblastic Leukemia.We were scheduled for May 5th but his test results showed the chromosome,that causes this cancer,was getting stronger.He is on a new medication to try to help get that gone so he can go to transplant.This medicine is giving him horrible side effects.He has a rash from head to toe along with not being able to walk at times.We travel to Chattanooga and also to Nashville for his treatment.We will never give up on Knox and he is a fighter but he is tired of being sick.This is the saddest thing to watch so I can't imagine how he feels 24/7. We are financially strained due to. Costs associated with his treatment.Example ,Knox needed two prescriptions that insurance doesn't cover.The total was $88.90 for these two prescriptions that will last one week.We are trying to keep his spirits up also as much as possible.He enjoys gaming and it's a distraction for him.We get him gift cards to use on his PlayStation or Roblox etc..He is really scared and I see it..If anyone wants to help with anything for Knox,this is a site for that..If you pray,we definitely need all the prayers possible especially now.We have had a very bad past few days with Knox being so sick.I am just updating for the ones who check on Knox.He is my grandson but feels like my own child to me..We have had custody since he was 2.I love him and his 12 year old brother like my own children ( maybe more😉).His brother is Knox's best friend and like a part of him.They finish each other's sentences.They are so close and I can see his brother is worried too He is a big help when Knox needs him also.We just want Knox to be cured and let him be a kid again..Thank you all for anything you have helped us with.
Special Notes
Sorry if I seem distant.Knoxs immune system is where the cancer is.We can't have visitors and he can't be around anyone but us unless they wear a mask, sanitizer etc..like with Covid but more intensive cleaning involved.I have to launder his bed clothes daily, amongst other things.Sometimes I don't hear people knocking most of the time bc I am in the back by Knox's room or in the laundry area.I start at dawn and my schedule ends at 11 PM just for Knox's needs right now..
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