Search
Cover photo
Follow pageFollow page

Help Us Through Krue’s Heart Surgery Journey

Ramona, CA

W
Story

For most of you know, Krue was born with Bicuspid Aortic Valve Stenosis. He was taken less than 12 hours after birth by ambulance to Rady Children's and spent 5 days in the NICU. Within the past 3 years, we’ve been monitoring his heart closely to see if his heart was being impacted by his heart disease, and unfortunately, it has. The blood flowing outward of his aortic valve is being sucked back into his left ventricle, causing moderate to severe dilation. This means it is putting extra pressure and work on the left ventricle to function properly. If it goes untreated, it can cause severe damage to his heart and body (imagine riding a 2 or 3-seater bike, and the other passengers aren’t helping pedal). This is what his heart is dealing with. On April 27th, Krue is scheduled for open heart surgery to try and repair his aortic valve. If the repair goes well, we’re looking at a 5-10 day hospital stay in a pediatric intensive care unit. It could be longer if any complications arise, but we’re hopeful that there won’t be. He will be released home and has a recovery period of up to 6 weeks. We’re unsure of how life will be once he is discharged and what going back to work will look like in the short term. Any support is truly appreciated, as both Dominick and I will be juggling household bills, 4 other children, and back-and-forth commutes between Ramona and Rady Children's. Thankfully, we have Shay and Denell, but neither has their license, and both also have school obligations, so they can only help so much. Also, they’re children, and we don’t want to rely on them so heavily with adult responsibilities during this time. Dominick’s job doesn’t have PTO or sick time, and I have limited hours. I plan to use mine to the extent I can, along with applying for Paid Family Leave. PFL isn’t immediate, nor will we know if we’re approved until after a 10-day waiting period once I apply and the Drs complete their portion. So this puts us in an in-between, unknown state. As mentioned above, we’re grateful for anything! Even if it’s just a share of our fundraising. We love and appreciate you all.

Care Calendar