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Dodging The Odds, Amanda’s Battle with Heart Failure

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Our family is in desperate need of help due to my recent diagnosis of Heart Failure. On Tuesday, March 24th I went on a very much needed day date with my husband. I had felt like I had a cold for a couple weeks leading up to this day but I was determined to have a great day and just enjoy each other’s company. We had breakfast, got tattoos and then decided to run some simple grocery errands, kid free. We made it to Target and all of a sudden I just felt like I had been hit by a bus. We decided to go to urgent care. When we arrived after describing having shortness of breath and chest pain they urged us to go to the ER. The ER ran some blood test, and also determined I was Covid positive. They admitted me because they believed the Covid had infected my heart and I needed to be treated in the ICU. After one night in the ICU they transferred me to The University of Minnesota Hospital because they said they didn’t have the proper equipment to help me if something got worse. Once at The U of M hospital, they ran more tests and ruled out that my heart had been infected by the covid but it was extremely enlarged. On Wednesday night I went into V-tach. I had a heart beat of over 225 for several minutes but for an unknown reason I didn’t fall unconscious. They waited as long as they could hoping I would pass out but since I did not they used a defibrillator and shocked me while conscious. This felt like being donkey kicked in the chest times 20. The next day it was determined I had heart failure and that without placement of an internal defibrillator device and a pharmaceutical regimen I wouldn’t be able to leave the hospital. I have been in the hospital now for a week and a half. My days have been filled with tests, trying different medications, trying different doses, trying everything i possibly can so I can get home to my babies. These tests have determined that my heart failure may be a genetic mutation or a condition that sometimes can occur to women who are freshly postpartum. Because my healthy lifestyle and a bit of stubbornness, I masked the condition for so long we can’t really determine what actually caused the problem and are focusing on how to treat the problem, so I have more time with my family. My body isn’t ready for oral medication so I have to remain on IV medication. Although the IV medication will help me feel better it does come with a price and is not a long term solution. If 100 people had this exact same condition and used the IV medication as treatment, by the end of the year only 20 of those people would still be alive. The life expectancy of this condition even with oral medication is around 5 years. I’m young and did live a healthy lifestyle so they are hoping that will buy me time but ultimately I may end up on the transplant list or dead. I want more time, I want to watch my five beautiful children grow. I’m hoping for a miracle but prayers are greatly appreciated. I have been so fortunate to have family and friends willing to jump in and help us right away. I can’t say thank you enough. Hoping this medical anomaly continues and turns into a medical miracle!

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