Hi! I was first diagnosed with Synovial Sarcoma 9 1/2 years ago! After multiple reoccurrences, my scans finally showed NED in January 2026, the same month my blood work came back very wacky. After a bone marrow biopsy it was confirmed I had T-MDS with TP53 mutation a complex karyotype as a result of the chemo I had 9 years prior. The only curative option is a Bone Marrow Transplant, and with that still comes a lot of risks. My brother has agreed to donate his bone marrow and I will be moving to Houston on June 9! My testing for the Bone Marrow Transplant starts June 15 and the transplant will either be June 30 or July 14 depending on which arm of a trial I am put in. I am required to stay in Houston for 100 days post transplant with a 24 hour a day caregiver. Once cleared I can return home to continue to recover. This will be a long journey but we have faith in the Lord that He will provide!
As much as I will want visitors, fresh flowers or outside food, because of the nature of a bone marrow transplant and the lack of immunity it causes, we have to be super cautious for germs. Because of that, fresh flowers and outside food can bring in germs :-(. visitors will also need to be limited and healthy. Todd will be organizing visitors and cooking the food so it meets the standards they require until my immune system recovers. The best help will come in the form of prayers, donations or a gift card. Thank you for praying with us on this cancer journey!