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Supporting the DiSanto Saberniak Family

Tinley park, IL

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To support the loving family that lost their mother and wife, Jennifer Disanto Saberniak. This will allow the family to mourn, which is one less thing to worry about in their time of need. Below is Jen's journey that Chris wrote earlier..... Jen’s Journey (written by Chris Saberniak) I’m not sure where to really begin…. Lost for words…. For the most part Jen and I are private people and don’t normally share too much on social media. However, I feel the need to let everyone know just how amazing and strong Jen truly is. As most of you know Jen was diagnosed in Jan 2021 after a partial hysterectomy and biopsy with a very aggressive type of cancer called undifferentiated high grade uterine sarcoma. In Feb 2021, she had a full hysterectomy in hopes of surgically removing all the cancer. Shortly after in March of 2021 she started chemotherapy for the next 12 weeks. She was determined to live a normal life and continue to do the things she would normally do. Most days after chemotherapy we would golf 18 holes something we both really enjoyed doing. In June 2021, she started radiation therapy every day for the next four weeks. She took it in stride and never complained. A matter of fact she chose to drive herself each day proving to herself that she was going to beat it. At the end of Jun 2021, she rang the bell for completing all her cancer treatments. In Aug 2021 she started her monthly follow-up MRI’s to see if she was still cancer free. In Feb 2022, she had a scare when a MRI of her chest showed an abnormality on her thymus gland. She chose to have her thymus gland removed and complete a biopsy. The biopsy came back negative, and she remained cancer free until Aug 2022 while golfing with her dad she noticed weakness on her right side of her body. She chose to complete the round of golf first before going to the ER to get it looked at. Golfing one of her best rounds of the year. That was August 25, 2022, I know this because the MRI showed that her cancer was back and metastasis to her brain. She had one brain tumor. It was determined by her doctors that the best course of action was to radiate the tumor and not surgery. She was so sure that this was just another bump in the road that it didn’t phase her. So much so that the doctor was shocked by her demeanor. He said to her that she was handling the news quite well for someone that was just told they had a brain tumor. She later told me that he was crossed off the Christmas list. Shortly after radiation on that tumor Jen was losing mobility in her leg due to the swelling the radiation caused. A special brace was built to help her move her leg. After about 3 weeks of steroids her mobility in her leg started to come back and was able to walk without the brace. For the next 4 months she would go in for radiation treatments for new tumors that would show up on the repeat MRI’s each month. During this time, she also had a CT scan of her body, and it was determined that the cancer spread to her lung too. After numerous calls and second opinions from some of the best hospitals in the country, the course of action was to start a very toxic regimen of chemotherapy again to hopefully kill the cancer cells within the body. A chemotherapy drug so toxic that they nicknamed it the “Red Devil”. She would alternate weeks of chemotherapy and radiation treatments, by the fourth chemo treatment she got so sick that she started to become lethargic, and I rushed her to the hospital where they thought she was having a stroke. She was admitted in the hospital for three days and had 3 platelet transfusions. Her Neurosurgeon decided it was the best to have surgery on the tumor that was giving her the most trouble with losing mobility in her right hand. On Jan 31, 2023, Jen had brain surgery where they successfully removed the tumor causing issues with her right arm with her mobility intact. Two days after surgery Jen walked out of the hospital and went home with 30 staples in her head. A week after surgery she started radiation again for other tumors that showed up on the MRI. That same week Jen decided to drive herself to her parents’ house while I was at work. Her mom said “how did you get here” Jen said she drove herself and said it was nice to feel normal. Feb 17, we had a nice family meal that Jen made, and we all sat down and ate together as a family. Jen made fettuccini alfredo with shrimp. She was so happy and had a good night with great conversation with me and the girls. As I sit here and type, Brie just told us that mom drove her to school that same morning. The next day, we were talking about the great dinner we had, and it was a while since we all sat down as a family and ate together. Shortly after I asked her a question about dinner for that night she didn’t respond. I got up and asked her the question again and she just gave a blank stare. My daughter asked her a question too and she gave the same blank stare. I called an ambulance and shortly after arriving at the hospital she had a seizure. Later she was intubated, and a feeding tube was inserted. I felt she came too far to give up now. We were going to do whatever it took to bring Jen home. A few days later she ended up having a stroke. She remained in the ICU for 8 days and then 2 days on the Oncology floor. We just wanted her home with us. They released her on the 10th day so we could take her home with me and the girls. Two days later she started her radiation treatments on the tumors that were planned to be radiated during the time she was in the hospital even though she was so weak and still recovering from the hospital stay. Her original team of doctors were still optimistic and believed she had a fighting chance with more treatments. I asked her what she wanted to do and her answer to me was “I can’t just sit here and do nothing” so we pressed on and never looked back. During the next two weeks of being at home, she got platelets transfusion, blood transfusions, radiation on the brain, physical therapy, occupational therapy, and speech therapy. Toward the end of the two weeks, we seen a decline in her strength and appetite. By the end of the week, she was so weak she could not take her medications and slept most of the day. She was complaining of a headache. I called the on-call radiation oncologist who said the headaches could be a side effect from the radiation and to alternate Tylenol and Motrin every six hours. She slept all of Saturday and I was worried because she could not take any of her pills and she was at high risk for a seizure. By Sunday morning she did not improve, so I called an ambulance where she could receive her medicine intravenously. The doctor took CT scans of her brain and chest and said let’s see where she is at in 24/48 hours. Those scans showed extreme swelling on the brain and the tumors have grown. Also, the cancer in her lung was active again and growing. On Monday there was no improvement, and she was still in a deep sleep. A repeat Ct scan of the brain showed that there was extreme swelling on the brain and the midline of the brain was starting to shift from the swelling. We sat down with her doctor and as a family we made the heart wrenching decision to move Jen to hospice. Knowing Jen, I told everyone that I wouldn’t be surprised if she jumped out of her bed later that day. Wouldn’t you know, Jen awoke while I was there with my sister and her friend Tanis. I called our girls to come back up to the hospital. I also called her dad and over the phone he said “I love you and she responded by saying “love you too” When the girls got to the hospital they were able to talk to Jen and she responded with ”I love you”. Conversation went on for an hour and at one point she said, “I will never leave you”. I took it as we will always have a guardian angel looking over us. Soon after she went back into a deep sleep and has been since. She got to say one last good-bye to us. She fought long and hard and it is her time to relax and not be in pain or worry anymore. As I sit here typing, I sit next to my beautiful wife surrounded by my girls and family thankful for the wonder 27 years with Jen. She is the smartest, strongest, most beautiful, best mother that I was lucky to have in my life. She fought like hell to beat this horrific disease but decided on her terms that it was time to stop fighting and be at peace. I honor her wishes and will be strong for our girls. She not only is a fighter, but she is also a giver. She is donating her body to science to help research and save lives in the future. She is amazing and continues to amaze me at how strong she has been through this entire journey. Jen touched so many lives and is a true example of a strong, loving, determined person. Love her now, forever and always. Till we meet again……..

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