Here’s the Story for those who don’t already know … After the testing Blake went through, the functional MRI showed a lot of data. All of this testing was suppose to lead to have SEG testing and that has been determined unsafe to do. The Functional MRI shows that 1. The cyst growth on the lesion has grown again since the last update: and had tripled since March. 2. The Cystic growth is inbetween 2 fiber tracks of Blake’s language. The growth poses a huge threat to his speech and language so the doctor feels the need that a 3 step surgery is immediatly needed. Blake will undergo brain surgery towards the end of August. There is dangers in waiting longer with how much growth we have seen. The first part of the surgery will be to go in and get a path to be able to get a biopsy, so we can get a diagnosis and be able to see what is feeding the growth Second part is to go back in and decompress the cyst Then they will go back is and laser ablation the lesion and cyst area to hopefully eliminate the issue. The risks of waiting for surgery are now larger than the risks of going through with the procedure. As a parent I am so scared. After 2+ years of being stable and controlled with meds; to all of a sudden being unstable, having a hard time controlling them with meds and now immediate surgery. I’m not a huge church goer, but I do believe in the power of prayer and if anyone could keep us in your thoughts; the date is set for August 20th. We need to all the pre op testing inbetween. I just want Blake to enjoy the rest of the summer before surgery. He has a very positive attitude. He says mom if it fixes everything and I have no more seizure then it’s worth it/ he’s only concerned that he have to have his hair shaved off and going back to school bald.