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Brave Like Maeve

Hanahan, SC


We found out last Friday that our daughter relapsed for the second time two years after her bone marrow transplant when they did a biopsy while she was having surgery for a kidney stone. Second relapses are much harder to treat and her best option is a trial at CHOP in Philadelphia. On October 21, 2021 our beautiful, brave, clever and creative now 8 year old daughter relapsed with leukemia. She had chemo from January 2019-April 2021 and was just beginning to feel healthy and strong. Normal. Our entire family has been devastated. With relapse things move much faster and it is much harder to treat. She endured chemo for the month of November, 24/7 continuous immunotherapy infusion the entire month of December, more chemotherapy and then full body radiation in January, emergency surgery and bone marrow transplant at the end of January 2022. She has been admitted for months at a time twice since transplant, spending ⅓ of 2022 hospitalized. Her original story - Our daughter Maeve got sick right before Christmas 2019 with fevers and joint pain. After multiple trips to the doctor without answers we knew in our gut something was very wrong so took her to the emergency room. Three weeks before her fifth birthday Maeve was diagnosed with leukemia and admitted to the hospital. We had a four month old baby and four other children at home. It was a nightmare. Maeve needed six blood transfusions in the first two weeks and was very very sick. She didn’t walk for months because of the pain in her legs. While we were inpatient Maeve’s dad moved everyone in with her maternal grandfather to have help with the other children. It’s been incredibly traumatic for all of them. They’ve all missed out on many opportunities this year. Joel is an amazing big brother to Maeve - he carries her wherever she wants to go. Gabriel is always ready to cook anything we can convince her to eat or curl up and read a book or play with her. Tess helps with so much, making up games to help Maeve with meds or playing with the other littles for a while so we can take care of Maeve. Pearl is only 20 months older than Maeve and they were very very close. This has been incredibly hard for her. Atticus was four months old when Maeve was diagnosed and is now 4.