Search

LOVE AND SUPPORT FOR JACINTA

Stone Ridge, NY

Story

Welcome to this page! If you would like to receive updates, please click on the FOLLOW PAGE link above and you will be asked to create a login. Once you create a login, you will get emails as soon as we post updates and you will also be able to access all our past updates that have more recent news than what is below. Thanks for your love and care! Jacinta got some news on May 22 after being admitted to the ER. Her lifelong migraines have gotten more intense over the past decade and particularly more disruptive to her normal functioning within the last few months. She has had three recent bouts - two of which landed her in the ER - with migraines that were accompanied by extreme nausea, vertigo, and near loss of consciousness. In all three of these recent cases, the episodes caused hours of intense agony, followed by a five day recovery period in which she slowly regained her energy, steadiness, and ability to function normally. On her second visit to the Kingston Hospital ER, they did a CT scan and found what we are guessing has been making Jacinta’s migraines so unbearable.Jacinta has taken to jokingly calling it the “Island of Misfit Cells,” while it’s technical term is a meningioma. The meninges is the membrane that lines the skull, enclosing the brain and spinal cord. A meningioma is a growth of cells on the meninges. It is inside the skull, but outside the actual brain. The CT scan appears to show a growth about the size of a golf ball (we later learned it’s more like a gum ball) on the top part of her brain, just to the right of center. The doctors and nurses all say this is a “good” spot for such a growth because it’s not near the eyes, ears, or spine, so there are fewer sensitive areas that the meningioma and it’s removal could adversely affect. Meningiomas are benign 90% of the time and slow growing. So this has probably been growing there for a long time. Right now it seems that if Jacinta doesn’t have a migraine episode triggered, then she won’t have to visit the ER again. So she is taking it nice and slow, keeping away from migraine trigger foods, and not letting herself get overheated. Basically she has cancelled almost everything on her schedule, is doing a lot of yoga, low key tv watching, reading, and resting. We have been in the midst of lots of learning, research, and planning. She got an MRI on June 3 to get a clearer picture of what we’re dealing with. We are awaiting results which will be passed on to her primary care physician, neurologist, and a neurosurgeon named Dr. Donato R. Pacione at NYU Langone Meningioma Center. He comes highly rated and will be having an initial consultation with us June 10 via telemedicine. If she chooses to go with this neurosurgeon, all other visits will be in person in NYC. This division of NYU only deals with meningiomas, so this is likely our best choice of all hospitals and was recommended by our friend Jen Gentile who was a nurse in a neurology unit for 6 years. Each night at 7:00 PM EST, some of us are doing a meditation visualizing Jacinta fully healthy and held in light and love. Feel free to do the same from wherever you are, for 5 minutes or 40 minutes. Knowing that her friends and family are all doing this all at the same time has been an invaluable comfort to Jacinta. Thanks for all your support and love. P.S. Jacinta is many months out from her surgery, but is still healing and discovering new diagnoses.


Special Notes

Feel free to share or email this page to people who know Jacinta, but please refrain from sharing it on social media. Jacinta loves to connect with you all in person, over the phone, and through text, but it can feel overwhelming for her to get too much attention from people online she does not know. Thank you so much for your consideration and kindness. We are letting people know with great thought. Because we have been asked by our family and friends, we have added a PayPal button for folks who have asked about how they could help us offset travel costs to doctors, physician co-pays, treatment not covered by insurance, months of lost employment, meals, and other incidentals. The PayPal is connected to Michael's account, Locust Hollow Technologies.The most important thing you can contribute is your LOVE! Sign up with the “follow page” button at the top to get updates! Jacinta imagines you all surrounding her with abundant love.There are so many of you out there building a powerful web of protection and total healing around her!

Care Calendar

KIND WORDS & COMMENTS